Joseph Patrick Kepferle,

 

 

 

 

Our oldest son, left us suddenly on March 5, 2000. Patrick's smile and charisma lit every room he entered. He was a natural actor and comedian--intelligent, witty, daring, and restless. He continually challenged us to question our complacency and seek greater visions of what truly could be. Poetic, selfless, caring, and athletic, he captured the imagination of his friends, pushed the limits of his world, and injected his carefree, often irreverent spirit into all facets of our world.

Like too many other children in this country, our Pat died in less than 24 hours from a vaccine-preventable killer, meningococcal meningitis. The summer before Pat started college, we received  information on meningitis in his college paperwork. It probably said something about considering a  meningitis vaccination even though there seemed to be little or no concern about the disease. Nonetheless, at his pre-college physical and immunization updates, we asked for the meningitis vaccine. We were told none was available there, but we were not concerned. Meningitis was supposedly  a "rare" disease, and the vaccine wasn't on the CDC or state "required" list. So, we were lulled into a false sense of security.

When Pat started school, we reminded him to get his vaccination, and assured him we would cover the  cost of about $70. He promised he'd get the immunization. But college life was hectic, and it wasn't his top priority.

Our nightmare began the first Sunday night in March when an emergency room doctor contacted us. Pat had been brought in by friends and was extremely sick. The doctor wasn't sure what Pat had and mentioned a rash spreading on his body. We should, he said, come as soon as possible.

We could not fathom what awaited us at the hospital. Pat's college friends filled the hallway as we rushed in. When I saw the priest in the critical care unit, where a nurse finally had taken us, I knew that things weren't good. Although the team was still working on him, Pat was gone. The doctors let us touch his head and tell him how much we loved him. Our hearts were broken; we had lost our Pat, the laughter of our hearts. . . .

I have searched my soul for what we could have done to save our son. The answer seems simple--ensure that he was vaccinated. But is it? Until weeks after Pat's death I couldn't even pronounce meningococcal meningitis, and I didn't understand the issues related to it, such as the effectiveness or the limitations of the vaccine. I couldn't comprehend that a disease primarily associated with developing countries in Africa could kill a strong, athletic person like my son here in our country. I believed in the  myth of American medical infallibility. I didn't realize how many high school and college students have been maimed or killed by meningitis until I reached out to other parents.

Trying to find out why and how I lost my son, I found that many medical personnel know little about meningitis and that much of the information provided to the public is technically accurate but potentially misleading, downplaying the seriousness of the disease and underscoring the rarity of complications. Some health professionals warned that getting the vaccine would provide a "false sense of security"  since it "only" protected against the A, C, Y, and W135 strains and not the B serogroup.

Raising awareness among parents and medical professionals has been challenging. I contend that a shield against four out of five of the major strains is better than nothing at all. Fortunately, recent studies have helped highlight the dangers in the college environment and the growing incidence of meningitis among all teens.

The week after Pat died, the Maryland legislature overwhelmingly passed ground-breaking legislation requiring incoming Maryland college dorm students to be vaccinated or sign a waiver declining the vaccine. Since then, several more states have passed similar laws, most recently in California. [Editor's Note: The California law requires that colleges and universities inform students about meningococcal vaccine and document that that they have done so.] I have talked to many parents who have lost children to meningitis. We want everyone to know the human impact of this "rare" disease. We all desperately want other parents to know that the tragedy we endured could have been prevented.

Pat's laughter is gone, but his presence is all around us. He and all the other victims compel me to write  again and again that vaccination and education are the best protection against this killer.


Send Pat a Happy Heavenly  Birthday to Heaven Message 
mailto:fmilley@aol.com

Dearest Pat, Today is a special day in Heaven because it is your Angel Birthday. Your mom and dad miss you so much, but they have brought honor to your name and your memory and work hard to protect others from the disease that took you and Ryan a whole life time to early. Happy Heavenly Birthday beautiful young man. Please give Ryan a hug for us. See you all soon. Frankie and Bob Milley

 

Mike and Deb, Pat' parents work really hard to help in the fight against Meningitis.
Learn more about Legislation on Meningitis Around the Country and write to Pat's Family

Happy Heavenly  Birthday Pat,
I may not know you but I feel as if I do. This is a wonderful day for you and I know your smiling down on your family and friends. I have a brother up there in the world of happens and joy of the lord and I know you two would get along really well. His name is Kenny Fisher  so just call his name when you want someone to talk with our play ball with and he will be there for you and when you do see him tell him his sister and family send their love. There is also a very sweet girl there that will make you smile and laugh  and her name is Christen Patterson she my daughters best friend and I know she would love to have someone to talk with.
                                                                      Diane Hines

HOME